People ask "how do you do it?" And I always say "one day at a time" but I
think Wesley's view is better: "We just do it. We have to."
There
has been multiple times where I find myself crying (and I don't doubt
this will stop) because I'm reminded that Alex has a life
threatening condition and then I see how delayed he is when I see our
friend's babies of the same age. But then I forget about it all when
those
beautiful brown eyes look up at me and into my eyes, with the look
of love. Everyday I fall more in love with our superman and absolutely
love seeing him grow. A year ago this month, we found out about Alexander's heart defect during my 20 week anatomy scan. That day, October 1st, really changed our lives. We were stunned and unsure of what to think or how to take it all in. I remember thinking "hypo plastic what?" Our
perinatologists provided us with choices, pushing abortion. But after an emotional week of taking it all in, we decided to give our baby a chance. On October 13th, we learned that our baby was going to be a BOY. From that point on I knew he was going to be a strong heart warrior. I didn't realize how much I could love him or how his smile makes me forget about what might be bothering me at the moment.
Alexander finally weighs 14 pounds!! He has been going through some changes that we are unsure of but over all he is a happy baby! On October 11th, Alexander turned 8 months old and on that day we introduced
avocados, which he seems to enjoy. We are still waiting for him to get an
Occupational Therapy assessment to assess his feeding and oral
motor skills. I am hoping this week we get a call.
If
you're wondering what is different about our little superman you're
not alone.. On October 2, Alexander graduated from his Doc Band! No
more helmet! The staff didn't expect him to grow this fast and we are
so
happy to see him without it! Alexander has been doing very well during
his physical therapy sessions, getting stronger every week. He is very
close to sitting unassisted and to rolling over from his stomach to his back!
Thursday is my day of worry. I ALWAYS worry when it is time to go to
CHLA for a check up and tomorrow is the day. Alexander will be getting
an echo cardiogram and
chest x-ray done prior to meeting with his cardiologist. I'm PRAYING
that his echo looks good (if it doesn't he
would need some sort of intervention) and that his chest x-ray is clear
(if it is, that means his diuretic is working and/or Alexander isn't
aspirating). Please pray that tomorrows visit goes well!
We are looking forward to the new milestones our superman learns and enjoy seeing him smile when he's learned or been exposed to something new. This weekend we will be taking him to the pumpkin patch. A first of many events this year. Thank you for continuing to follow us as we watch our Superman learn, grow, and continue to stay strong. Positive thoughts and prayers are encouraged, especially for tomorrow!
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Please donate or join us on October 26th to walk in honor of our Superman and help raise money for more research on pediatric heart defects, strokes, heart attacks, and how to prevent heart disease, 
There
has been multiple times where I find myself crying (and I don't doubt
this will stop) because I'm reminded that Alex has a life
threatening condition and then I see how delayed he is when I see our
friend's babies of the same age. But then I forget about it all when
those
beautiful brown eyes look up at me and into my eyes, with the look
of love. Everyday I fall more in love with our superman and absolutely
love seeing him grow. A year ago this month, we found out about Alexander's heart defect during my 20 week anatomy scan. That day, October 1st, really changed our lives. We were stunned and unsure of what to think or how to take it all in. I remember thinking "hypo plastic what?" Our perinatologists provided us with choices, pushing abortion. But after an emotional week of taking it all in, we decided to give our baby a chance. On October 13th, we learned that our baby was going to be a BOY. From that point on I knew he was going to be a strong heart warrior. I didn't realize how much I could love him or how his smile makes me forget about what might be bothering me at the moment.
Alexander finally weighs 14 pounds!! He has been going through some changes that we are unsure of but over all he is a happy baby! On October 11th, Alexander turned 8 months old and on that day we introduced
avocados, which he seems to enjoy. We are still waiting for him to get an
Occupational Therapy assessment to assess his feeding and oral
motor skills. I am hoping this week we get a call. 
