Day 1 with a new HEART

It's Friday already? I woke up this morning thinking it was Thursday. The last 2 days have been surreal and  this week has just been crazy! It started with getting back into our routine; Alexander returning to school and myself returning back to work, to then getting a call a day later, informing you that your son is about to get a new heart! Time to put "normal" on hold for awhile because things are about to get crazy! 

With the last two days being emotionally crazy, today has been a quiet day. Quiet days are good. Mommy and daddy got to nap, we got a room at the Ronald McDonald House, and the nurses found a happy medium of sedation for our boy. He's been sleeping comfortably with minimal agitation. As he sleeps, the nurses have been able to wean him from some of his heavy medications, some of his heart meds, all while keeping him comfortable and happy. 

If he continues to have a good night, then the weekend will consist of some busy events for our Superman. Some of the events will be closing his chest. Once his chest is closed, the chest tubes will come out and he will be extubated! Time has to be given in between each event, as Alexander's body could stress out a bit. However, if he continues to respond well to one event, then another event will happen. It might be a busy weekend for Alexander and most definitely an emotional one for me. 

Keep the prayers and positive thoughts coming for our Superman. It's going to be a long road ahead, but seeing him move in the right direction makes us smile! :)