Happy New Year!

 It's been a little over a month since my last post and I do apologize for not updating sooner. I know some of you check for updates often so I'm hoping next year I'll get better at updating everyone sooner. However, sometimes no news is good news!

So first good news- Alexander has been off of oxygen since Thanksgiving! It was a bit of a bumpy road with the weaning process (one moment he had oxygen levels at 78 and the next minute his levels were 50!). It was bumpy from the time he was discharged to Thanksgiving, but as we know with Alexander, he just needs time!

Since he's been off of oxygen, his oxygen levels have been between 83-86, the highest he has EVER been. Some family members didn't believe it, so I had to take a picture to prove it. These numbers make Wesley and I VERY happy! It gives us hope that once he has his third of the 3 stage surgeries, his oxygen levels will be close to 100%.

More positive news- On December 15th, Alexander took his first steps! After 9 months of crawling, we now have a walker! and boy is he PROUD to be learning to stand up and walk! It was a great Christmas present to me, to see him take his steps and be so proud to do it. 2 days before Christmas, Alexander got his braces for his feet. The braces are to help him with his balance and reposition his feet. Since he's gotten the braces, he's become MUCH more confident in standing and walking. It won't be long before he's  running around. :)

The holidays have been good to us, as we have been enjoying watching our Superman grow, thrive and learn about everything in life, and be happy about pleasing anyone. I love seeing how he wants to please everyone and show anyone that just because he can't express the words vocally, he knows what he wants, when he wants it, and how to show his emotions toward others. 

On January 8th, Alexander has a cardiology appointment and an appointment with his EP (electrophysiologist aka pacemaker doctor). Wes and I are worried about this appointment because we know the discussion of having another pacemaker put in is soon (as early as February or March).  If you recall, Alexander's battery in his pacemaker had to work harder after his open heart surgery and we were told in November that he had max 6 months left with his current pacemaker. Alexander also has a few other appointments coming up in the next few months that will possibly answer other questions. These appointments will involve a few invasive procedures, ones I'm not ready to think about,  let alone, discuss. As those appointments get closer I'll be ready to talk about them...maybe. 

So as I mentioned in the beginning, no news is good news. Not a whole lot has been going on, up until recently with our boy realizing he can walk and wanting to walk. For now, I think about the positives and the "now". I enjoy every moment I have with our big boy with the Superman heart! I don't take things for granted or let the little petty things bother me that may bother others. 

 Wes and I will continue to  enjoy being a family everyday, learn more about Alexander and continue to teach him about the world around him. We hope that 2015 brings us lots of new positive beginnings with our boy. Thank you for your continuous positive thoughts and prayers. We hope everyone had a very Merry Christmas and that everyone has a safe New Years! <3