GREAT! GREAT! GREAT!

Happy New Year! Alexander had his cardiology and electrophysiology (EP) appointment today. Wes and I were a bit nervous going into it and after 3 hours of being at CHLA of attempting to keep Alexander calm during his chest x-ray, echocardiogram and the interrogation of his pacemaker, it ended up being a great appointment! His chest x-ray looked GREAT; better than it ever has. His oxygen levels are still staying high (84-86), his echocardiogram looked great AND the results of his pacemaker showed that he has another 6 months with it! No procedures will be needed until summer and we don't have to return for another follow up appointment until the end of February. WOO-HOO!

As much as Alexander hated having the test done by the nurses and technicians (which required us to hold him down), he did well. When he wasn't screaming to not have the test completed, he was wanting to walk throughout the entire cardiac floor. Alexander is very popular on the floor so when nurses and doctors saw him walking, they all couldn't believe how good and happy he looked!

So now that the new year has started, we are back to getting into our routine of doctors appointments and therapy appointments. The adjustment of getting back into a routine with therapy has been a little rough for Alexander but it hasn't slowed him down a bit. In fact, he's all over the place now and eating all of the time! He's becoming a toddler more and more and now it's time to start planning a birthday party! :)

Thank you all for continuing to follow along this windy road with our Superman! I hope to have another update on Alexander's progress in the next few weeks.