Happy!

Update time- Yes, as usual, my posts are a bit later than I state, but time escapes me and next thing I know, family members are reminding me to update everyone on Alexander.

Alexander is happy! Healthwise, there hasn't been much of a change but overall he is happy.  Alexander's need for oxygen support  hasn't been  changed either.  He is hardly on any while he sleeps but is still requiring 2.5-3 liters when he's active. His cardiologist hasn't given us any ideas on when he may be off of the oxygen or when his next cath will be. Boston Children's Hospital did get back to us and what they suggested was nothing different than what CHLA had said. So for now we just continue to be blessed to have Alexander home and happy!

On Wednesday, Alexander was finally off of the 8 week sternum precaution. We are now able to pick him up under his arms, allow him to climb more, and just be a toddler. It had been a little bit more hectic with not being able to to lift him under the arms (picture yourself trying to put him in his carseat, booster seat, shopping cart. You don't realize how difficult it is, until you have to lift your 25 pound son up like an infant, while handling his oxygen line)...

Now that things have some what settled down, Alexander's appetite has returned and all of his therapies (Speech, OT, PT, and Early Intervention) have begun. Since we know he needs his next surgery sooner than planned, we have begun to provide him with high calorie meals. High calorie snacks appear to be the most difficult food item to provide, so if you have any great high calorie snack recipes or ideas-send them my way. :) 

Christopher Robin :)

Halloween has come and gone, and while he couldn't be out for to long, he did trick or treat to a few houses. After the second house, Alexander began to get the idea of what Trick or Treating was all about. Everyday he is becoming more of an independent boy and wanting to help out around the house. He enjoys helping with the laundry, sweeping the floors, helping with putting in a trash bag, getting his utensils when needed, and his favorite thing to do is feed Stella! :)

He had a follow up with his ENT last week regarding the tubes that were placed in his ears 5 weeks ago. The blood from the procedure of putting his tubes in, clotted around his ear tubes. We are now having to put peroxide in his ear to help clear that up. We haven't noticed much of a change with his hearing, however, he is trying to elicit more sounds and has been signing more often, pairing signs together and beginning to form sentences via sign.

With Alexander recovering of surgery, dealing with his 50 foot tubing of oxygen, having flu season among us, and trying to keep Alexander healthy, we haven't done a whole lot. He really can't afford to get sick, as it could send him straight back to the hospital, with him being where he was right after surgery. However, I imagine things will begin to get busy with the holidays right around the corner (seriously, where did time go?), but I have ever intention to update after Thanksgiving- hoping he's thriving more, continuing to be so happy, and being the mischievous toddler that he is starting to become. Please continue to send positive thoughts and prayers our way. Alexander needs to stay out of the hospital to continue to stay healthy, grow, and thrive before his next battle. Thank you for following along our Superman's journey. <3