Alexander had a routine biopsy done yesterday. The results showed NO REJECTION!!A week ago, Alexander had a follow up transplant appointment, with everything being on track. His doctors are continuing to wean some of his medications and he's been able to stop 1 of 2 of the blood pressure medications. Two days later, Alexander woke us up at 1:30 in the morning, vomiting. He continued to get sick every hour and at 7 am we took him to CHLA Emergency Room. Now I would have brought him in sooner, but transplant suggested to wait a little bit (at 3:30 am) since he wasn't looking or acting dehydrated. By 11:30 am, he was admitted to CV Acute for observation and continued to hydrate him with IV fluids. Thankfully it was only 36 hours in the hospital and he was discharged on Friday. The weekend consisted of resting before his biopsy.
Prior to all of this, we got to take Alexander to his first movie theater experice. Of course, the movie he saw was Cars 3 and he LOVED it! He had a great time. He sat through the previews and the entire movie. We also got to take him to Disneyland for 2 days. We spent the first day at Disneyland and the following day at California Adventure. Being his first time at both parks, he did pretty good and it was so memorable for us all! If you ask him who he saw at Disneyland, he will sign "Mickey Mouse" and if you ask him who he saw at California Adventure, he will sign "Lightening McQueen" with a big smile. <3
For a mom whose son has had a bumpy 4 years of life, I teared up when Alexander got to engage in these new adventures. There was always a thought of 'what if' and so to see that he was finally given the opportunity to engage in these experiences, makes me cry with happy tears. I look forward to seeing his reaction to more 'first experiences'.
Even with the new adventures we've gotten to take Alexander on, he continues to be super busy with in-home school, in-home therapy, and private therapy. We are limited with our summer activities (such as going to the beach) due to his suppressed immune system, but we are making the best of it.Since the GI bug and biopsy, Alexander is still not back to feeling like himself, but we pray that he will be within the next few days. He loves to ride his bike, play with his remote control cars, or go swimming, and we hope that can all be resumed soon.
Thanks for continuing to follow us on Alexander's new journey. Here are more pictures from his latest adventures...
He's just tad bit interested in Lightening McQueen. :)
