Thursday, November 20, 2014

We are home!

We have been home since yesterday afternoon. Alexander only needed to stay 1 night in the hospital! Wes and I are so happy to be home. Alexander seems to be pretty happy too! :) 

The cath procedure was successful. His cardiologist plugged a large collateral off of his Superior vena cava and put a stent in his left pulmonary artery. The stent wasn't the most ideal decision but the best. Ballooning open his pulmonary artery would have been better because the stent is now going to make Alexander's next open heart surgery (the Fontan) a little more hectic. Part of the reason the balloon wasn't working is because Alexander's aorta is putting pressure on his pulmonary artery. If the stent wasn't put in, Alexander would have had to go back into surgery, and have a more invasive procedure done that might not fix the problem. 

Alexander is still on oxygen but not as much (1/4 liter instead of a 1/2). However, the plan is to start weening him off the oxygen and hopefully he will be off of it by Thanksgiving. We do have to check in with his cardiologist on Monday and let her know how Alexander is doing. If he's doing okay, she may want to see him then;  if he's doing good, then he will have another appointment with her after Thanksgiving. His cardiologist doesn't trust him and believes that if things don't improve, he may need to go back to the cath lab... So for now, we are thankful to be home and that his procedure went well (so far). We are praying that each day  Alexander will begin to feel better, that his oxygen levels will improve as we begin the weening process, and that we won't need to make another visit to CHLA until after Thanksgiving!! Keep the prayers and positive thoughts coming for our Superman and thank you for following along!  <3 

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