3 WEEKS!

Today marks the third week Alexander has been in the hospital. The third week of living in the hospital and calling it "home". Three weeks in  and still no answers. Alexander has made the turn for, what seems like, the better! He FINALLY tested negative for Rhinovirus, which means there is no more isolation precautions, which means he can FINALLY walk the hallways and go to the playroom. Monday was the first opportunity for Alexander to finally go for a walk outside of his room. He was LOVING it and LOVED playing in the playroom. He required 2 liters of oxygen while walking but was keeping his saturations above 63.

Yesterday, there was much more walking. He wanted to walk all day but his heart wouldn't let him. By the afternoon of playing and walking up and down the hallways, he required up to 4 liters of oxygen to get his saturations up high enough.There was actually talk of going home tomorrow!! I was so ready for it too! But, that was quickly changed by the surgical team. They said he couldn't go home tomorrow, that they wanted to keep him until Thursday and that pre-op would start tomorrow incase Starnes decides that having the Fontan is the best decision, he would do it Thursday. Well that just didn't work for Wes and I. We told them no on the pre-op and wanted to wait until we discussed with Dr. Starnes (Alexander's surgeon) proceeding. Saying no to pre-op means postponing the surgery. I wasn't ready to stress Alexander out over the pre-op stuff if he wasn't even going to have the surgery. Postponing the operation also allows BCH to send their thoughts over, which sounds like we should hear from them no later than Monday.

There was not a lot that happened today. The day just consisted of keeping our Superman happy and moving. Although he was tired most of the day, he still proceed to play all day with his grandparents and Auntie. Tomorrow, Dr. Starnes  will be meeting with the cardiac team to discuss Alexander and then consult with us about his plan and the next few steps to getting Alexander healthy and out of the hospital. Tomorrow morning is a big day and I'm sure how I feel about it. I know I want answers but will Dr. Starnes be able to provide me with the answers I want to hear?

Our Superman needs your thoughts and prayers to continue to heal, grow, and stay strong so that he can get out of here and experience life outside of the hospital. <3