Alexander has been home for 3 days now and appears to be doing well. Words can't describe how good it feels to be home and to see the smile on Alexander's face. When we arrived home on Thursday afternoon, Alexander played with every toy in the house, with a big smile on his face- it was like it was Christmas Day.
For now, we are slowly adjusting to the new medication routine (6 meds instead of 3), the 50 feet of oxygen tubing following him around the house and getting back into some sort routine that we had over a month ago. Thank you all for your prayers and positive thoughts. In addition, THANK you to all who have contributed to Alexander's GoFund Me account and provide help to us while Alexander was in the hospital. We never did get a room in the Ronald McDonald House, so the help that was given was very much appreciated! I will write a new blog post after this coming week of therapy and doctor appointments. I hope that it is short and sweet-with nothing but positives. <3
Since my last post, there wasn't much change except for that Alexander's surgery was postponed. His surgeon agreed with his cardiologist that it is best to wait as along as possible; wait for him to get bigger (closer to 27 pounds or more-he's currently 25 pounds), and for him to stay healthy. His oxygen saturations have improved some since the last post as well. He requires less than 1 liter while sleeping but while active he requires 2-3 liters of oxygen to keep his saturations in the high 60's to low 70's. Activity wise, he seems to be doing great inside the house, but once we go outside, he can only walk for a short period of time before Wes and I need to make him stop or pick him up. Alexander will probably be on oxygen until his Fontan, but we are hoping that as he gets bigger and his heart starts to relax more, that he won't require so much. He has a follow-up clinic appointment on Thursday and we are hoping for good news.
For now, we are slowly adjusting to the new medication routine (6 meds instead of 3), the 50 feet of oxygen tubing following him around the house and getting back into some sort routine that we had over a month ago. Thank you all for your prayers and positive thoughts. In addition, THANK you to all who have contributed to Alexander's GoFund Me account and provide help to us while Alexander was in the hospital. We never did get a room in the Ronald McDonald House, so the help that was given was very much appreciated! I will write a new blog post after this coming week of therapy and doctor appointments. I hope that it is short and sweet-with nothing but positives. <3 
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