Making Progress towards Recovery

When your child is intubated, sedated, and on a paralytic drug, you feel helpless! So when I get a chance to put lotion on dry patches of his skin I take it!

Yesterday, I did not write up a post as there was not much change. It was another quiet day of trying to balance out Alexander's oxygen levels and his blood pressure. Trying to find out which narcotic medicine to decrease and which muscle relaxer to increase. It was not the type of day I wanted, as I want things happening for the good - not at a stand still. But with Alexander, you must make small changes and take baby steps in order for him to respond the way we want.

So today has been better. The balance of blood pressure and oxygen levels has improved tremendously; seeing oxygen saturations at 80 instead of 65 and blood pressure is 120 instead of 80. They took out 2 of his 3 chest tubes, eliminated 2 narcotic meds, removed his catheter, are beginning to give him Pedialyte and are no longer using the paralytic drug! This is the type of change I like to see! :) Keep it up Alexander! You are our superhero! <3

In addition, the last post I mentioned, he may need the battery replaced in his pacemaker and may need to go to the Cath lab. BOTH will NOT be happening as of now. :) The doctors were able to provide more life to his battery (3-6 months span) and the collateral he has is not preventing his oxygen levels from dropping, so there is no need to put him through another procedure. The battery change in the pacemaker may still happen, but that is the last thing anyone is worried about at this time. So overall, YAY!!! :)

Thank you all for the continuous support and prayers. He continues to need the prayers for a stable recovery, to continue to do well with being weaned from the nitric and the ventilator and praying he will be extubated in the next few days!