Tuesday, October 28, 2014

Going home TOMORROW!

The day has finally come. Alexander gets to go home! 13 days post op and we are finally going to be home.


I haven't updated the blog in a few days, as there hasn't been much to post about. Wes and I have been
dealing with Alexander's stress level the past 5 days (ever since we came to CV Acute). Alexander gets extremely upset when a nurse or doctor touches him. There has only been a few times where he was okay with a hospital staff in the room with him, but majority of the time he has been an unhappy boy.

Alexander gets terrified that something is going to happen to him each time we lay him down. So terrified that he immediately starts to panic. When he gets upset, his heart has to work harder, which raises his blood pressure, which means he is now on Enalapril for his blood pressure. To add to all of it, Alexander is still having problems being weened off the oxygen, which means he will be going home with oxygen.  This is something Wes and I really DON"T want to do but it is only temporary and it is just another obstacle we must overcome with Alexander. Having Alexander on oxygen is going to bring quite a few changes into our household and daily routines, but as always, we will manage to fit it in and overcome this obstacles.  Prayers and positive thoughts are appreciated as we pray that Alexander is only on oxygen for a very short time and that he continues to thrive much more once we are home!  Thank you all for following us along our journey.


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