I first began writing up this post on Monday night when we learned that Alexander's surgery should only be a few hours, with staying in the ICU for 1-2 days and then a few days in CV Acute for a few days. IF he did GREAT, we could be home by Monday. Well that isn't happening...
Wednesday was an emotionally exhausting and frustrating day! Alexander cried all morning and by 1 pm, he was tired of people touching him. He had his nose swabbed for Enterovirus, blood drawn, and a chest x-ray. We went home and packed up the car to head to the Ronald McDonald House. As we were getting ready to leave, CHLA called us to inform us that Alexander tested positive for either Rhino virus or Enterovirus!! We were stunned because the kid has NO cold symptoms! Let me just mention that this is not the very serious flu that is going around (Enterovirus D-68) and is instead just like a common cold.
At that point, everything was in a stand still. Yesterday, we headed back down to CHLA so that Alexander could be tested again for the Enterovirus. The poor kid began getting upset as soon as the nurse came into the room to check his vitals. This afternoon we learned that Alexander does have Enterovirus! UGH! However, we (the doctors, Wes, and I) all believe that Alexander had Enterovirus when he was sick 3.5 weeks ago and it is still lingering. So, NOW the plan is for Alexander's surgeon to decide on Tuesday when he wants to do the surgery. Alexander's surgeon only operates on Mondays and Thursdays, so this coming Thursday would be the earliest.
I feel like our life is on "pause" right now and we are just waiting for someone to say "go". Hopefully that day is Tuesday, and the pre-op day will be successful and the scheduled surgery can happen. I am certainly NOT ready for any of this but I'm tired of waiting and rescheduling.
SO...positive thoughts and prayers sent our way, are appreciated. We need Alexander to stay healthy and strong and for him to be over this virus. I will update you all soon! Thanks for following us along on our Superman's journey.
At that point, everything was in a stand still. Yesterday, we headed back down to CHLA so that Alexander could be tested again for the Enterovirus. The poor kid began getting upset as soon as the nurse came into the room to check his vitals. This afternoon we learned that Alexander does have Enterovirus! UGH! However, we (the doctors, Wes, and I) all believe that Alexander had Enterovirus when he was sick 3.5 weeks ago and it is still lingering. So, NOW the plan is for Alexander's surgeon to decide on Tuesday when he wants to do the surgery. Alexander's surgeon only operates on Mondays and Thursdays, so this coming Thursday would be the earliest.
I feel like our life is on "pause" right now and we are just waiting for someone to say "go". Hopefully that day is Tuesday, and the pre-op day will be successful and the scheduled surgery can happen. I am certainly NOT ready for any of this but I'm tired of waiting and rescheduling.
SO...positive thoughts and prayers sent our way, are appreciated. We need Alexander to stay healthy and strong and for him to be over this virus. I will update you all soon! Thanks for following us along on our Superman's journey.
Awwww you poor things. Or sucks having to wait and letting the anxiety build when you want everything to just be done and over with and on the road to recovery. I pray and hope that he heals from the virus quickly and when he gets done with surgery that he is back home being a fun loving toddler. Con mucho cariño.
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