Update time: Good news, Okay news, and Not-so-great news.

Now that all of Alexander's appointments are over with, I can now update everyone with the good news, the okay news, and the not-so-great news.


The visit to the geneticist went fine and the appointment with his orthopedic surgeon went okay. Alexander will not need surgery on his foot and instead, will need to be fitted for a brace; one for each foot. He will probably have to wear the braces for a few years. When he is older and he is having any pain in his foot then we surgery may be needed. 

Alexander's sonogram went well  and the meeting with his neurosurgeon (regarding the bump on his back) went okay. Since Alexander can't have an MRI because his pacemaker is not MRI compatible, more tests will need to be done, with one of them being followed by a urologist. That appointment is scheduled for November. His neurosurgeon did mention however, that since the bump comes and goes, instead of just showing up and not going away, is good news.

The visits with his cardiac electrophysiology  found nothing wrong with his pacemaker and the results of his EEG showed no seizure activity!! YAY! So the consensus is that he is a very active toddler with half a heart, that falls asleep when he finally relaxes! 

Now for the not-so-great news. Alexander's cardiology appointment didn't go so well. I honestly knew something was going on with Alex by the blue lips he was showing in pictures and his oxygen levels being lower than we'd like. Well, the tissue around his Atrial Septum has grown back. If you remember back in June, Alexander went to the cath lab to have that tissue removed. Well it has grown back and is something we knew could happen. So instead of sending him back to the cath lab over and over again to have the tissue removed, Alexander will be having his Atrial Septum removed. So an unexpected open heart surgery has been scheduled for next week, October 9th. :( This is not what Wes and I want at all!  However, it is better than having Alex constantly going to the cath lab and have the tissue removed that we know will grow back. The positive of having this surgery is that the tissue won't be growing back and he SHOULDN'T need another surgery until his Fontan (the 3rd of the series) in 2016!  We don't know any additional details about the surgery and won't until we meet with Alexander's surgeon on Monday, October 6th.

So this weekend will consist of lots of family time in quarantine. Alexander is finally over his cold he caught three weeks ago and  we need to keep him healthy. We aren't ready for next week but instead want to be on the other side of this procedure and already home. Lots of positive thoughts and prayers are appreciated for Alexander to have a great procedure, speedy recovery and nothing but good outcomes with any test that are done. I will update the blog after our consult with his surgeon, on what the procedure will consist of. ❤️