1 week and still shocked.

Today marks one week! Alexander has had his new heart for 1 week and I still laugh as nurses begin to panic when his oxygen saturations drop to 89 percent! Just a week ago he was walking quickly down the hall with sats of 60 percent! Just crazy.

SO today. Today started off well. Alexander slept through the night last night, which meant we all slept through the night! He had music therapy this morning, which he loves and consists of a music therapist singing, playing her guitar and sharing musical instruments with Alexander. He ate a little more than yesterday and had physical therapy and occupational therapy. Then by 3 pm he was becoming a little bit more restless and agitated. He suddenly didn't want to eat or drink and once again, gagging at anything we offered him. His respiratory rate began to climb as well. About 7 pm, Wes and I realized all of these little indications was telling us he was probably in pain. The nurse agreed as he hadn't had any pain meds since the morning and he had a pretty full day. He was then given his pain meds and some Benadryl for his itching (his incision is itching him). He's been asleep for sometime now and hopefully sleeps through the night, with a quick wake up when his (many) meds are due.

Tomorrow morning they will draw morning labs and complete his daily chest x-ray to continue to monitor Alexander, making sure it is just pain and nothing more. As well as, continue to monitor his new heart.

Thanks for following along on our Superman's journey. He still has far to go, but he's moving in the right direction. Please pray and send thoughts that today's small small bump is pain related and nothing more; prayers for more positives tomorrow as well. <3