First Biopsy Tomorrow

Tomorrow Alexander goes to the Cath lab for his first biopsy. The biopsy will consist of taking a small piece of his heart and testing it for rejection. During the Cath, his doctor will also look at his pulmonary pressures, to see if he can come off one of his medications he's been on since he was 6 months old. He is expected to go into the Cath lab around 12:30 (3rd on the list), however, the two cases prior to him could take longer than planned, which means Alexander might not be taken until sometime after 12:30. Fingers crossed all goes as planned-waiting with a toddler who hasn't eaten since the night before, isn't going to be fun. Anyone want to come wait with him? :)

Other than the plan for tomorrow, Alexander continues to head in the right direction. We are continuing to adjust his medication, get Alexander acclimated to the new medications, get him eating better, and get him moving. Yesterday morning, Alexander stopped using assisted oxygen and has been without the assisted oxygen since-doing FANTASTIC! His oxygen saturations are between 95-100%!!

During physical therapy today, Alexander finally walked more than a few steps without getting tired. Then after his physical therapy, while he was "relaxing" in his bed, he decided to stand up in bed! Someone is clearly feeling better and realizing his body isn't as sore as he thought...I am predicting trouble by the weekend.

I ask for positive thoughts and prayers for our superman tomorrow. I pray that the results of his biopsy are negative and the Cath goes well. This procedure and results will tell us so much and help figure out the next few steps toward going home!! 💗