Thursday, December 1, 2016

Alexander's got a brand new HEART!

It's been 12 hours since Alexander came out of the OR with his brand new heart! Overall, the surgery went well. The surgery took 6 hours, with Alexander on bypass for 3 hours. He is currently have oxygen saturations between 97-100%! My boy has pink toes and fingers! :)

The heart is a great match for Alexander!

Since he's been out of the OR, Alexander has been sedated, still intubated and his sternum is still open. His sternum is open due to his pulmonary hypertension- Alexander's lung have high pressures (from his old heart) and haven't learned to relax, so now his new heart is having to deal with his high pressured lungs. The surgeons are hoping that his lungs begin to relax and they can close his chest by Saturday, which means, he could hopefully be extubated by the weekend.

A few hours ago, he had one small seizure, which is expected/allowed for transplant patients-but only one. I'm a little on the worried side of the seizures, from his previous history and knowing that some of the anti-rejection medications can interact with his current anti-seizure medication. He's also had a low grade fever, which is also expected, as his body is trying to "fight" the new heart.

Alexander knows we are with him in the room. He opens his eyes when he hears us and if he isn't sedated enough, he realizes he has a tube down his throat. He then begins to panic, gag and attempt to pull his tube out! This is heart breaking for me as he thrashing around with worried eyes, and there isn't much Wes and I can do but try to calm him down, remind him he's okay, and that he's so BRAVE!

Tonight could be slightly bumping as the nurses and doctors try to find the right amount of medication to provide Alexander, in order to keep him sedated safely and not continuing to wake up enough to panic. They need him to rest. Alexander needs to rest.  Please continue to keep those positive thoughts and prayers for Alexander as he continues to recover. Please also send prayer sand positive thoughts to the donor's family, that made the decision to donate their child's organs.

Alexander has a brand new HEART! <3

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