Cath yesterday, Biopsy results today

I delayed on updating the blog because I was waiting to hear the results of Alexander's biopsy. Alexander did great during the Cath, with no issues or concerns. The biopsy results came back this afternoon showing no significant rejection, which is good at this stage.

Yesterday our Superman was a bit angry. Angry because he couldn't eat or drink and then after the Cath, he was angry because he had to lay flat for 6 hours! This was definitely frustrating for Wes and I, but mostly for him. He couldn't quite understand why he had to stay flat and why he couldn't eat or drink. But overall, he handled it well.

Today we worked on Alexander adjusting to his meds, making slight changes, including weaning off his Sildenfil (something he's been on since he was 6 months old). No more midnight meds! Wes and I are SO HAPPY about this (I'm sure the grandparents are too, as they had to make sure to be up at midnight when they babysat Alex).  He had physical therapy yesterday and today. He's not wanting to walk very much, but we are attributing that to being hungry on Thursday and today, sore from his Cath.

The plan for the weekend is to get Alexander moving more, (perhaps even down the halls), getting him eating more, and adjusting medications as needed. Our Superman is continuing to move in the right direction. Prayers he keeps it up, so we can figure out when home will happen. 💗