Sunday, December 11, 2016

Oxygen support? Cath tomorrow?


An update for today because I'm not asleep yet.

Not much to update but that Alexander continues to move in the right direction. He is beginning to eat more often, getting better with his medication, and starting to move around. Around 4 pm today, they turned his oxygen support off. His oxygen saturations stayed in the low 90's for over an hour, but then began to dip into the 80's. We put the oxygen back on him at 1/4 liter and his sats went back up to the high 90's (this is great since he was on 1 liter this morning. I'm guessing by the end of the week, he should be off the oxygen for good! It was great to see his handsome face without the nasal cannula. It had been 15 months since I've seen it! (tears of joy!!).

We still need to get him out of bed and see what his levels do when he is walking. This hasn't happened for 2 reasons: one is, he's still sore and just not trying to move. The second is we are back on the 8 week sternum precaution. That moves we must pick our almost 4 year old up like an infant. All about scooping him; no picking him up under the arms. This makes it hard to readjust him in bed, getting him in and out of bed, and later on-into a car seat. 😑 When physical therapy comes tomorrow (they don't work on the weekends), we will be working on getting Alexander on his feet.

There is a possibility he will go to the cath lab tomorrow, instead of Thursday too. Last night, while Alexander was sleeping peacefully, he had an arrhythmia. It's nothing to alarming, but if he does it again tonight, they will want to biopsy his heart tomorrow (to make sure there is no rejection).

As for the post I had completed earlier...it really doesn't feel like Christmas while we are in the hospital with Alexander, until we step outside. I am very fortunate for the early Christmas gift for Alexander. There are no words to describe my emotions behind it all. I do know that we will make it the best that we can, regardless of where we are. I also just might take a suggestion from one of my best friends, and celebrate Christmas when we get home. If that means the stockings are put up and christmas music is playing in the middle of January, then so be it. 🎄

Please continue to send positive thoughts and prayers. This week will be busy and probably fly by. I pray that Alexander continues to move in the right direction and the results of the cath (whether it be tomorrow or Thursday) are what we want. 💗

2 comments:

  1. Christmas is where the Heart is...love and power to all three of you.

    ReplyDelete
  2. So happy for Mr. Alex and you and my team and I at All Kids Dentistry are sending you big hugs!

    ReplyDelete