Monday, December 12, 2016

Busy Day for our Superman

So no Cath today. Since Alexander didn't have any more arrhythmias, the plan is still set for him to go to the Cath lab on Thursday. Today, was a busy day for our superman, whom didn't sleep well, which means momma didn't sleep well.

He had his daily blood draw, an echocardiogram, Physical therapy and Occupational therapy. PT and OT were back to back and his body was tired afterwards. However a nap didn't occur and, instead a little relaxation consisting of watching Mickey Mouse Clubhouse, cured it. During his therapy, he was able to stand for a few seconds, but preferred to sit down and play. Occuaptaionl therapy worked on manipulating toys. His fine motor muscles are weaker, which is contributed from surgery. He will be getting OT, PT, and hopefully speech therapy while in the hospital, as he continues to heal.

 Tomorrow we will work with PT on increasing his strength to stand. As well as,  teaching him how to move his body when he wants to reach for a toy (i.e. a car) that is out of arms length (he's currently trying to crawl, but that can't happen right now...not until he's healed a bit more). He's 3 though, almost 4, so we will see how that goes.

Alexander seems to be getting acclimated to his medications (yay!), but new ones keep getting added to it, so the gagging is still present. The scheduling of all of his meds (i've lost track on how many..maybe 11) to a time where his sleep isn't interrupted and they aren't given all at once, is a little hectic for us and his little body. His eating is getting better and no more loose stools! All positives :)

 I've said it before...if Alexander is happy and continuing to move in the right direction, then I'm happy. 💓




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